world psoriasis day 29th october 2010. world psoriasis day 2010día mundial de la psoriasis 2010...

WORLD PSORIASIS DAY29th October 2010

World Psoriasis Day 2010Día Mundial de la Psoriasis 2010

ASSOCIATIONS

•Chile

•Colombia

•El Salvador

•México

•Venezuela

•Argentina•Puerto Rico

•Ecuador

•Panamá

World Psoriasis Day 2010

ASSOCIATIONS

•UNAPSO, União Nacional das Associações de Brasil

•Amazonas (Brasil)

•São Paulo (Brasil)

•Rio de Janeiro (Brasil)

•Bahia (Brasil)

•Ceará (Brasil)

•Brasília(Brasil)

•RG do Sul (Brasil)


SNAPSHOT

LATINAPSO had for WPD 2020 :• 39 urban actions (56% more than in 2009)• 60 TV apperarances (50% more than in

2009)• 70 radio appearances (27% more than in

2009)• 103 notes and interviews on written press

and internet (34% more than in 2009)


SNAPSHOTActivities LATINAPSO WPD 2009-2010

25

40

55

77

39

6070

103

0

20

40

60

80

100

120

Urban actions TV Radio Written press andinternet

20092010


URBAN ACTIONSAll Associations in LATINAPSO together prepared 39 urban actions for WPD (56% more than last year) on 19 cities

• Argentina: Córdoba, Santa Fe, Tucumán, Buenos Aires, Mar del Plata

• Brasil: Brasilia, Fortaleza, Porto Alegre, Rio de Janeiro, Salvador de Bahia, São Paulo

• Colombia: Cali, Manizales y Medellín• Ecuador: Quito• El Salvador: San Salvador• Panamá: Ciudad de Panamá• Puerto Rico: San José• Venezuela: Caracas


URBAN ACTIONS• Live music with delivery of leaflets and T-shirts, in

Salvador de Bahia (Brasil),• Public party with traditional music and theatre in

Quito (Ecuador)• Events for doctors, patients, families and press in

Salvador de Bahia, as well as conference-talks at public hospitals in Fortaleza, Argentina,

• Street parade and patining on bare feet in Medellín, Manizales y Cali (Colombia).

• Awareness walk in Fortaleza (Brasil), Quito (Ecuador) and Panamá.


URBAN ACTIONS• Information stands for the distribution of

informative material and medical advice in the city center in Porto Alegre (Brazil) in Rio de Janeiro (Brazil)

• Delivery of free information at bus stops in San Salvador (El Salvador)

• Educational meeting, press conference at open air, in front of the beach in Puerto Rico

• Inline skating in group in Buenos Aires and Mar del Plata (Argentina)


MEDIA

All together, Associations member of Latinapso were present on:

•49 TV channels•45 radios•34 newspapers•18 internet sites (excluding

Associations` websites and Latinapso website)


TELEVISIONAll together LATINAPSOAssociations were 60 times on TV (50% more than previous year) in 49 channels of Latin America:

• Argentina: América, América 24, TN, Canal 26, Canal 7, Crónica, Metro, canal local de Santa Fe, Canal 8, Canal 10, Canal 5 Supercanal, Canal 12 CCC, Canal de Cable San Cayetano

• Brasil: Tv Globo , Tv Bandeirantes,Tr Rit, TV Diário, TV Verdes Mares, TV União, TV Cidade, RBS TV, TV Educativa, TV Urbana, TV Senado

• Colombia: Caracol TV, Telepacífico, Televida, Canal 8• Ecuador: RTS , Gama TV, TC Televisión, Hoy TV• El Salvador: Canal 2, Canal 4, Canal 10 (Televisión Nacional), Canal 8• Panamá: Telemetro, Canal 23, Canales de Cable, TVN, RPC, Hossana• Puerto Rico: Wapa TV, Tele ORO• Venezuela: Publi Tips, Venevisión, Venezolana de Televisión, Televen


RADIOAll together LATINAPSOAssociations were 70 times on the Radio (27% more than previous year) in 45 stations of Latin America:

• Argentina: AM: LU9 Radio Mar del Plata- FM: 98.5 Radio "Brisas“, LV7 Y LV12 en sus frecuencias AM y FM- Metropolitana FM, LT9 y FM sol sport, María Córdoba, Radio Rosario, Radio 2 Rosario, Cadena 3, Radio Del Plata, Radio10, FM Millenium, Radio Palermo,

• Brasil: Metrópole FM, Rádio Guaíba, Band News, Rádio ABC, Rádio Verdes Mares, Radio Globo,Radio Melícia da Imaculada,Radio Capital

• Colombia: Caracol Radio, LA FM, Todelar, Red Sonora• Ecuador: EQUASHIRYS - IRFEYAL, QUITO, La Luna• El Salvador: Radio Luz, Radio María• México: Educación, Radio Centro, IMER• Panamá: RPC Radio, La Exitosa;KW Continente, Radio María,

Fabulosa Stereo,Omega Stereo, Radio Nacional• Puerto Rico: Univision, WKAQ, Radio ORO, Radio Isla• Venezuela: JAZZ 95.5, Kuerpo Sano FM


WRITTEN PRESS AND INTERNET

All together LATINAPSOAssociations were named or interviewed 103 times on written press and internet (34% more than previous year) in 34 newspapers and 18 sites of Latin America:


OTHER ACTIVITIES

There were as well:• 47 open conference-talks• 26 participation at Fairs and Congress• 26 interactive workshops for general public• 17 additional activities: presss conferences,

presentation of videos and books about psoriasis, premiere of institutional videos of some Associations, posters and stickers stamping, days of free medical advice


IDEAS FROM THE WORKSHOSP ABOUT WPD FROM 2nd

MEETING OF LATINAPSO (May 2010)

• All Associations said to have taken advantage of the ideas gathered at the Brainstorming sessionat the 2nd Meeting of LATINAPSO

• Some Associations copied the slogans, other the ideas for urban actions (balloons, awareness walks) or activities for children

• To be remarked: all Associations are aware of the need of effectively communicate their message, adapting it depending on the public (patients, doctos, industry, media, etc.)


CHALLENGES FOR WPD 2011

• Associations point as challenges for next year:– Professional training for actions with

governments (petitions, etc.)– Having lager budget for more urban actions– Interactive workshop for media at 3rd Meeting

of Latinapso– Strategy of communication at Latinapso on the

whole region– Begin in 2010 to prepare the WPD 2011


SUMMARY OF ACTIVITIES

Activities from all Associations member of Latinapso for WPD 2010 under the slogan:

Childhood psoriasis, a challenge for all


BRASIL – UNAPSOAsociación de Psoriasis

de Brasil

• Event in the Brazilian press Association, where there were presented films about the disease, with conferences of doctors and patients.

• The president of UNAPSO BRAZIL gave a speech to present the newly created UNAPSO.


BRASIL – ABRAPSEAsociación Brasiliense

de Psoriasis

• Information activitiy in coordination with the Secretariat of Assistência Médica Social – (Sams), Hospital Universitário de Brasília- HUB, Sociedade Brasileira de Dermatologia – SBD y Associação Brasiliense de Psoríase – (Abrapse). Place: Senado Federal (National Congress)

• Release of the 4th edition of brochure “Combatendo

a psoríase com informações” (Fighting psoriasis with information)


BRASIL – ABRAPSEAsociación Brasiliense

de Psoriasis


BRASIL – ABAPPAsociación Bahiana

de Portadores de Psoriasis

• Urban action: Live music with delivery of leaflets and T-shirts

• Public event for – Doctors– Patients, family and friends– Health Authorities– Press– SBD - Sociedade Brasileira de Dermatologia.


BRASIL – ACEPPAsociación Cearense

de Portadores de Psoriasis

• Medical conference-talks• Awareness walk• Closing event at public hospital


BRASIL – APAMAsociación de Psoriasis

de Amazônia

Educational event for patients and general public at Fundação Alfredo da Matta in Manaus city


BRASIL – PSORISULAsociación de Psoriasis

de Rio Grande do Sul

• Conference-talk and free activities for patients• Awareness week for psoriasis patients• Free delivery of guide “Psoriasis, uma questão da

pele” (Psoriasis, a matter of skin)


BRASIL – PSORISULAsociación de Psoriasis

de Rio Grande do Sul

• Speech at Camara de Vereadores de Porto Alegre (local government)


BRASIL – PSORIERJAsociación de Psoriasis

de Rio de Janeiro

• Information stand at Praça da Cinelândia in the city centre, with doctors and patients delivering educational brochures and leaflets for general public.


BRASIL – AAPPAsociación de Apoyo a los Portadores

de Psoriasis de São Paulo

• Urban action with information and clowns at the city centre


BRASIL – AAPPAsociación de Apoyo a los Portadores

de Psoriasis de São Paulo


COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia

• Meetings for patients• Free conference-talks in three cities: Manizales,

Medellín y Cali.• Activities for childen at hospitals• Urban actions: Street parade and patining on bare

feet in Medellín, Manizales y Cali (Colombia)• Delivery of free gifts: T-shirts of Teddy bear and

Teddy-bears



Urban actions: conference-talks and activities at children hospitals



Urban Actions: street parade and foot-painting



Premiere of insitutional video of FUNDAPSO

http://www.youtube.com/watch?v=1GS8SyNoXbc&feature=player_embedded


EL SALVADOR – PSONUVESPsoriasis Nueva Vida El Salvador

• 8 educational and medical conference-talks• Ads and interviews on TV and radio• Urban actions• Closing event, with premiere of institutional video



Institutional video:http://vimeo.com/16337198

Video of the event:http://www.youtube.com/watch?v=WI1SAo4Hodw&feature=player_embedded

Inteviews for the WPD:http://www.youtube.com/watch?v=UU5M9jkJZck&feature=player_embedded


PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda

al Paciente de Psoriasis




• Free educational meeting– Objective: to educate about the disease, existing

treatmente as well as offer tools for improving quality of live and overcome rejection towards social integration

– Participation of dematologists and reumathologists




• Press conference and urban action at open air, at Ventana al Mar en San Juan

World Psoriasis Day 2010Día Mundial de la Psoriasis 2010



• Report “The efectos of psoriasis”, on Wapa TV: http://www.wapa.tv/noticias/salud/los-efectos-de-la-psoriasis/20101114185450

• Article about urban action of APAPP at Notisalud Wapa TV: http://wapa.tv/noticias/salud/dia-mundial-de-la-psoriasis/20101030181137


MÉXICO – AMCPSOAsociación Mexicana

contra la Psoriasis

• 7th National Congress for Psoriasis patients and families

• SIMPOSIUM ABOUT PSORIASIS, for healthcare professionals

• Press conference



contra la Psoriasis

Simposium for healthcare

professionals



contra la Psoriasis

Congress for psoriasis patients

and families


ECUADOR – FEPSOFundación Ecuatoriana

de la Psoriasis

• Conference-talks• Urban actions• Media• Closing public event


ECUADOR – FEPSOFundación Ecuatoriana

de la Psoriasis


PANAMÁ – FPPFundación de Psoriasis

de Panamá

Drawing contest for children – 2nd prize at IFPA


PANAMÁ – FPPFundación de Psoriasis

de Panamá

• Awareness walk


VENEZUELA – AVEPSOAsociación Venezolana de Psoriasis

• 29th October, 14:00h• Auditorium IPP at UCV • Open forum and conference-talk with two

excelent specialists in child psoriasis and psoriasis arthritis

• Free entrance


ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis

• Children drawing contest• Urban actions in five cities• Conference-talks for patients, doctors and

general public, in 5 cities• Petitions to government authorities• 58 appearances at media



Petitions to authoritiesDrawing contest for children


4

“Do not let psoriasis tear us apart”


World Psoriasis Day 2010 Tucumán

Santa Fe

Córdoba


Urban actions in five cities



Buenos Aires



Mar del Plata

world psoriasis day 29th october 2010. world psoriasis day 2010día mundial de la psoriasis 2010...

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